Sunday, 19 March 2017

When the days are tough...

This was really tough week. It was disaster from the word go to be quite honest.
 Jackson wasn't quite himself with a cold and a horrible cough.
 I went to pick him up from his Dad's house at 7am on Monday morning and from that moment Jackson didn't seem himself. He knew straight away that the routine had changed. We had a Communication Workshop this afternoon instead of Nursery.
We got home after driving back from his Dads and Jackson was looking for all his 'Twirlywoo's' and 'Great Big Hoo' was nowhere to be found! OMG disaster! (It really is a disaster in Jackson's mind) He needs the whole set to be there.
 I must of left him at my Mum's house on Thursday. Jackson was so upset continuingly asking for 'Great Big Hoo'
 I managed to get us ready in all the upset and out of the house quickly and stop off at my Mum's on the way to my Nan and Grandad'd house.
But that also didn't go down well as then he thought we were going to my parents instead of my Nan's! Rookie mistake!!!
Jackson was so upset and didn't even want Great Big Bloody Hoo anymore!! I didn't realise that that would set him off even more.
The whole day Jackson was getting worse... Crying constantly. Jackson really doesn't deal with change well at all. I felt so bad as in his mind this was all such a big deal. Meltdown after meltdown.
We thought we might be able to calm him down for a walk in a pushchair ... No such luck! Screamed and Screamed the WHOLE way. By this time he was so tired from crying all day and not wanting to eat. He passed out on the sofa at 2:30pm. We couldn't go to the Workshop in the end anyway.
3pm came and I was taking Jackson to his 'Bampy's' house ( His Dad's Dad).
After being woken by arriving at his house after an hour or so Jackson calmed down and things were back to normal.... Back to Jackson's normal routine. His whole world just went back to normal and he was happy. Thank god! All I want is for Jackson to be happy and I know its really hard for him.
We were all glad Monday was over! Monday really lived up to its crappy title!!










I always think that Jackson and Dexter plot to need/go to the loo every time I sit down to have my dinner!! One or the other... They take it in turns 'Your turn tonight' Lets annoy Mummy and make her food get really cold! Cheers boys.


Jackson actually astounds me everyday with his intelligence! Today we were driving back from Nursery and Jackson was sat in his car seat saying the 11 Times Table! Incredible.
He is going to fly at school! We just need that extra one to one help for him and things will be perfect. He really is my little superstar.




Wednesday arrived and Jackson wasn't good again. I had to work and I felt so bad leaving him with my Nan and Grandad as I really didn't know how he was going to be and if we had a repeat of Monday then I would come straight home from work to help.
Jackson had this rubbish cold dragging him down. My poorly boy. Jackson doesn't understand when he's unwell.
I bought him some new clothes on Tuesday which he refused to wear and started off his meltdown before I had even left the house. It wasn't too loud, Different to what I normally buy for him or anything but it was new and Jackson knew that.
Calpol was the life saver today! Oh and Bubbles.... Not sure who likes them more though.. Dexter or Jackson. 1 hour of blowing bubbles!! Whatever it takes for Jackson to be happy with this horrible cold.


I had ordered a few things from Amazon which the App said they had been delivered today. Got home and they were nowhere to be found. Emailed Amazon as I was panicking and they emailed back saying they are in number 2!
So went across the road to collect it all. Had an embarrassing moment when I realised on the label it said 'Deliver to Nigel at No. 2 if no one is in'
I don't know if he's called Nigel I just had to put a name down to make it out like I know them for them to take the delivery! No wonder they were looking at me like I was a crazy women!!






This week has been a little annoying and pretty tough as little man hasn't been well at all. Screaming most days and ALOT of meltdowns.
 We have had 4pm Danger naps, I brought the wrong sized Twirlywoo Duvet Cover ( Which Jackson still seems to love.. Just hope he doesn't grow too much otherwise he will get cold feet!)  I also thought you get 2 months off a year on the Council Tax ..... Turns out I DON'T!! How annoying! I was looking forward to extra money for 2 months. Its been a long week. This week has felt really challenging. But that's something that I will get used to.


Every week can't be a walk in the park... That goes with being a parent of any child. But you live and you learn daily being a Mum to an Autistic Child.
Everyday is a school day. But I wouldn't have it any other way.


Thanks for reading.
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Kelly and Jackson
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